Development and Implementation of Electronic Decision Aids for Genetic Testing in Inherited Cancer Syndromes

Purpose

An electronic decision aid will be used to assist individuals in choosing a multi-gene panel with their medical oncologist instead of a genetic counselor. A decision aid may facilitate quality decisions around the selection of a specific multi-gene panel without a genetic counselor. Upon completion of the decision aid, participants will be asked to indicate their decision about whether to pursue genetic testing and which specific multi-gene panel to pursue. A survey will then be administered to assess participants' opinions on the decision aid.

Condition

  • Genetic Testing

Eligibility

Eligible Ages
Over 18 Years
Eligible Genders
All
Accepts Healthy Volunteers
No

Inclusion Criteria

  • Adults (18 years of age or older) - Diagnosed with malignant ovarian tumor or malignant pancreatic adenocarcinoma

Exclusion Criteria

  • Children (<18 years of age) - Unable to complete surveys - Previous germline genetic testing

Study Design

Phase
N/A
Study Type
Interventional
Allocation
N/A
Intervention Model
Single Group Assignment
Primary Purpose
Health Services Research
Masking
None (Open Label)

Arm Groups

ArmDescriptionAssigned Intervention
Experimental
Electronic Decision Aid 		Participants in this arm will complete an electronic decision aid for genetic testing.
  • Other: Survey of Decision Aid
    The decision aid will be evaluated by a survey administered to those who have used the tool.

More Details

Status
Completed
Sponsor
Massachusetts General Hospital

Study Contact